Caregivers assume a role that is fulfilling and rewarding, but draining and difficult as they provide so much time, effort and support for a friend or loved one. It’s important for caregivers to focus on the resources that are available to them, so they can focus on the patient’s treatment journey. Financial assistance, legal assistance, long-term care options, counseling and other support resources are available.
01. Financial Assistance
经济支援for Mesothelioma Patients
面临诊断为侵略性，晚期癌症的患者，例如万博专业版面临越来越多的账单，包括现有账单，治疗费用和次要费用。由于许多因素已经消耗了患者的时间和精力，因此财务负担只会增加诊断不良的压力。
要考虑的费用
护理人员可以通过帮助患者计划从诊断到治疗旅程开始可能产生的费用来提供支持。
- 治疗costs:Chemotherapy drugs, chemotherapy and radiation therapy sessions, inpatient and outpatient care after surgery (recurrent for palliative surgeries).
- 次要费用：在寻找间皮瘤专家和主要癌症护理中心，以及在治疗或身体局限性上的收入损失时万博专业版，旅行和住宿。
财务负担的法律援助
大多数恶性间皮瘤病例已被证明是由万博专业版石棉暴露，这通常是由于职业曝光。石棉制造商和雇主知道致癌物质的危害，但仍继续暴露消费者和雇员。结果，石棉疾病受害者已向专业律师事务所寻求法律帮助，以提交石棉和间皮瘤声称，要求对其受伤和苦难获得经济补偿。万博专业版
找到经济援助的方式包括：
- Mesothelioma lawsuits:An attorney can help you or a loved onefile a mesothelioma lawsuitagainst companies responsible for producing asbestos.
- VAbenefits:间皮万博专业版瘤律师可以帮助退伍军人发现并申请福利，并找出所有可用的财政援助模式。
- 社会保障福利：Lawyers are well-versed in benefits mesothelioma victims might be eligible for, including social security. They can help with determining eligibility and applying for available benefits.
02. Health Insurance
健康保险和癌症
癌症患者的一个普遍关注点是他们的健康保险是否会涵盖他们的治疗。医疗服务可能会变得极为昂贵，尤其是当保险公司拒绝索赔时。患者应该对初级保险治疗范围, as well as any supplemental coverage that may be offered through other insurance types, such as Medicare, Medicaid, VA benefits and Social Security. If questions or concerns arise, patients should seek the help of loved ones, as well as insurance representatives.
Questions to ask regarding insurance coverage and cancer:
- What is covered and to what extent? (i.e. mesothelioma doctor visits, treatments, hospitalization)
- 有共付额，如果是的话，他们是什么？
- 我的保险公司是否必须预先授权专家，治疗和医院访问？
- 我可以选择看到什么专家吗？
- 如果我对特定的医生不满意，我可以做出改变吗？
- 我是否可以允许进行网络外护理，特别是对于一个可以更好地治疗不是网络的专家？
- 哪些治疗选择最适合我的报道？（即家庭健康，医师办公室，医院设置）
主要保险和承保范围
There are many different types of primary health insurance available. A managed health care plan (MCO) breaks down into three different types: HMO (health insurance organization), PPO (preferred provider organization) or POS (point of service PPO). Each type differs based on coverage, however, there are some overarching characteristics that provide a basic understanding.
Typically MCOs provide policy holders with a list of in-network providers to choose from, and choosing to go out-of-network (common when seeking out mesothelioma specialists) entails an additional cost. In some cases, pre-approval may be required for specialist coverage. For some patients, it may be a possibility to seek a change in their policy to receive better coverage.
Other Coverage Options
Medicare和Medicaid是政府资助的其他补充保险的其他常见形式。覆盖范围各不相同，患者应在寻求治疗之前与他们的提供者讨论细节。医疗补助尤其对间皮瘤患者产生了许多局限性，因为许多基于办公室的间皮瘤诊所不接受医疗补助，并且不会接受它作为万博专业版化学疗法和放射治疗方法的次要覆盖范围。
There are additional government-funded programs that may be an option for underinsured cancer patients. Veterans may also have other options, such as the ability to receive treatments at a VA hospital or obtain prescription medications through a local veteran medical center. For those that are unable to work, Social Security disability benefits may be an option to help make up for the financial hardship of lost income.
03.长期护理
Planning for Long-Term Cancer Care
Aggressive cancers such as mesothelioma can take a toll on patients, requiring them to utilize a variety of care options, including hospital care and home care. Planning ahead for long-term care options can help patients and families ensure a seamless transition between care facilities.
在计划过程中，患者及其亲人应该做以下操作：
- 对长期护理选择进行大量研究
- 注意护理设施的位置
- 调查设施声誉
- 知道可用于长期护理的选项
- Decide how to fund the cost of care
- 了解政府计划是可能有助于费用的保险单
Assistance Finding Long-Term Care Solutions
癌症患者和护理人员需要进行许多对话。了解患者的医疗需求是关键，需要肿瘤学家和其他参与其治疗计划的医生的建议。保险公司是为保单持有人提供其选择和覆盖信息的另一种资源。
医院的社会工作者也是一个很好的资源，尤其是对于那些仅通过Medicare和Medicaid覆盖的人来说。医疗补助覆盖法的法律因州而有所不同，但重要的是要注意，在许多情况下，医疗补助不涵盖癌症患者的长期护理。
Long-Term Home Care for Cancer Patients
After having the appropriate conversations and discussing the patient’s medical needs, in-home care might be the preferred option. Some locations allow caregivers to seek out long-term in-home care programs that provide care to patients within the comforts of their own home, under the supervision of a skilled health care team. This type of program may be able to provide registered nurses, case managers, medication management, transportation to treatments, medical supplies and equipment and home modifications.
如果这是一个潜在的考虑因素，则护理人员或患者应接触他们的间皮瘤治疗肿瘤学家或社会工作者，以查看其位置是否存在或通过医院可用。万博专业版
04.长期住房
癌症患者的长期住房
管理难以治疗的癌症通常要求患者从癌症中心和长期的专家护理远离他们的家。来回旅行可能很昂贵，如果间皮瘤患者无法开车，则需要朋友和家人的大量帮助，而积极的治疗通常就是这种情况。万博专业版长期住房可能是最好的解决方案，但是，找到适合患者需求的住宿并不总是那么容易。
Resources for Finding Out-of-Town Housing
除了进行个人研究并与医生讨论患者的需求外，医院社会工作者是一种有用的资源。特别是主要的癌症中心，很受欢迎mesothelioma treatment, often have partnerships with local apartments, hotels and other establishments nearby that will help patients find a trustworthy housing option within their budget and located close to their treatment facility.
Other tips for finding housing options:
- Call area hotels and provide them with information on your situation
- 寻找带有套房选项的酒店，可提供长期住宿和可访问性
- Contact area accommodations and ask about special pricing for patients seeking long-term care nearby
- 利用互联网查看短期和长期住宿选项
- Visit Joe’s House在联合国找到成千上万的住宿选择ited States, some of which are partners with the website directly
- 研究美国癌症协会的Cancer Hope Lodges，这为全国数十个地点提供了免费的住所。它们是癌症患者及其家人的“家外之家”，同时还提供了众多的联系和资源。
05.运输
癌症患者的运输帮助
接受间皮瘤治疗的患者通常需要朋友和亲人的万博专业版帮助，以便和从后续的预约和治疗中进行。在这不是一个选择的时候，患者可能会求助于其他资源。
Local Transportation Services
Community-based transportation may be the best option for patients with city-, country- and state-run services. The yellow pages, the internet or a quick search for “transportation services near me” can be extremely helpful.
Other places to seek help:
- The State Department of Transportation
- 医院社会工作者
- 癌症中心（可能有现场运输服务）
- Community charitable organizations, such as churches or senior centers
Specialized Cancer Transportation
除了基于社区的资源外，还有一些专门为癌症患者创建的程序。
- 康复之路：由美国癌症协会（American Cancer Society）提供的康复之路帮助患者无法在其他地方寻找骑行时的治疗。了解更多信息，访问他们的页面.
- Angel Flight:由志愿者经营，Angel Flight为医疗需求和面临经济困难的患者提供航空运输。要求和资格信息可以找到天使飞行网站.
- Lyft:Lyft partnered with Blue Cross Blue Shield in 2017 to pass along free rides to covered cancer patients. They continue to explore other partnerships, such as one with the American Cancer society to provide free medical transport to patients in need. Contact美国癌症协会for information on other potential partnerships.
对于想要帮助其他有需要的患者的照顾者或亲人，consider volunteering your own timeto give a ride to others going through cancer treatments.
06. Support Services
癌症支持服务
万博专业版间皮瘤患者和被诊断出患有晚期癌症的其他患者面临着癌症本身的情绪和身体的挑战treatment side effects. Fortunately, there are some cancer support resources that can offer assistance, peace and comfort.
- Audiology:助听器有各种形状，尺寸和功能可用来帮助听力困难的患者，这对于老年人来说是一个普遍的问题。
- 花卉服务：鲜花是一种简单而善良的手势，可以向您展示您所关心的人。考虑一个丰富多彩的布置以使他们的一天变亮，但要警惕医院的局限性或可能引发恶心的浓烈的花朵。
- Food services:Caregivers should branch outside of the hospital cafeteria and explore other food options for a change of atmosphere. It’s important to remember to eat all meals, especially during a stressful time that changes your daily routine.
- Seeing-eye dogs:眼神狗可以帮助那些视力差的人围绕着狗，同时也为他们提供情感支持。
- Sign language interpreters:ADA有法律that requires public accommodations, like hospitals, to provide ASL services to deaf patients and caregivers. Private interpreters are also an option. Many doctors and hospitals can provide a list of local ASL interpreters.
- Travel agents:万博专业版间皮瘤治疗通常需要外地旅行才能找到专家和著名的癌症诊所。旅行社可以帮助寻找患者及其家人提前计划的交易和服务，并找到满足他们需求的旅行选择。
- Wish fulfillment programs:Similar to Make-A-Wish, there are programs that provide wish-fulfillment services to terminally ill adults, such as those affected by malignant pleural mesothelioma. Some options includeSecond Wind Dreams,Reeling and Healing Midwest,Dream Foundation,For Pete’s Sake Cancer Respite Foundation和永远年轻.
07. Counseling
癌症患者的咨询
癌症患者和周围的患者都经常在诊断后处理大量的情绪，包括休克，否认，怀疑，愤怒，内gui，焦虑和抑郁。辅导员可能是帮助患者，护理人员，朋友和家人应对诊断的方法。
There are many different types of counseling out there, and other services from licensed psychiatrists and psychologists. Patients and caregivers can partake in individual counseling or family counseling. Insurance may cover services, or it may not, so it’s important to get into contact with potential centers and discuss financing and coverage options.
08.精神指导
精神指导
Spiritual guidance is a resource that some cancer patients rely on and view as an additional mode of support. Facing a serious and terminal disease can change a patient’s beliefs, and cancer centers often offer patients guidance and resources based on whatever denomination they are. Spiritual guidance can also be helpful to caregivers, offering a sense of peace and acceptance. (The Mesothelioma Cancer Alliance at Mesothelioma.com does not recognize or advocate on behalf of any single religious, spiritual or other denomination or sect.)
09. End-of-Life Planning
临终计划
被诊断出患有晚期癌症的患者面临许多艰难的决定，生命的终结并不总是那么容易。通常，护理人员有很多责任有助于做出重要决定。要考虑的项目包括：
- Wills and DNRs
- 生活信托
- 临终关怀与家庭护理
- Funeral planning
- Community resources available
10.书籍
万博专业版间皮瘤书籍和癌症书籍
发现有关间皮瘤和其他癌症的所有知识都可以帮助患者及其护理人员获得有关该疾病的答案，了解有万博专业版关寻求治愈的新兴临床试验，并为生存的间皮瘤提供希望，阅读间皮瘤幸存者的故事，了解中皮瘤幸存者的故事，内容丰富的参考指南等等。
寻找间皮瘤和其他与癌症有关的书籍的受欢迎的地方万博专业版：
- 癌症书在Barnes＆Noble
- Mesothelioma books在Barnes＆Noble
- 最畅销的癌症书籍on Amazon.com
- Mesothelioma bookson Amazon.com
- Mesothelioma ebooksfor Kindle
- Mesothelioma ebooks对于角落
Explore must-read book sections and sort by the best reviews to find books that others found helpful when looking for more information on mesothelioma and other rare cancers.
11.护理人员资源
The Importance of Caregiver Resources
万博专业版间皮瘤是一种癌症，可以极大地改变自己的生活，以及周围的癌症。护理人员资源可以为患者和家庭提供所需的资源，以充分了解可用的帮助，并在经历如此艰难的时期时寻求帮助。通过计划未来的事情，患者和看护人可以发现他们在治疗过程中所需的支持。
