01. Survivor Stories
Mesothelioma Survivor Stories
Mesothelioma survivor stories provide hope for patients recently diagnosed with万博专业版。These stories are inspirational for those undergoing treatment. They prove long-term survival is possible due to improved diagnostic tools andmesothelioma treatments。
The mesothelioma community is small but supportive. Long-term mesothelioma survivors share their experiences and stories to inspire other patients. Mesothelioma survivors also often raise awareness aboutasbestos exposure。他们主张间皮瘤社区和有暴露风险的人。万博专业版
Read about courageous mesothelioma survivors below.
Heather Von St. James: Pleural Mesothelioma Survivor
希瑟·冯·圣詹姆斯（Heather von St. James）36岁pleural mesothelioma。她的诊断是在2005年生下女儿莉莉·罗斯（Lily Rose）后三个月。
Without treatment, Heather faced a prognosis of 15 months. She was not satisfied with this prognosis and decided to pursue an experimental, aggressive surgical procedure. The late Dr. David Sugarbaker pioneered the procedure atBrigham and Women’s Hospital。希瑟（Heather）和她的丈夫卡梅伦（Cameron）认为手术会给她带来长期无癌生活的机会。
Heather underwent anextrapleural pneumonectomy，它去除了她的癌性肺和其他受影响的组织。然后用加热的化学疗法沐浴她的胸腔。从手术中恢复过来后，希瑟进行了四次化疗课程，然后进行30天放射治疗。
希瑟的手术和治疗后成功。她已经是胸膜间皮瘤幸存者已有14年以上了。万博专业版
As a mesothelioma survivor, Heather has dedicated her life to raising awareness. Every year on the anniversary of her surgery, Heather and her loved ones celebrateLung Leavin’ Day。年度活动庆祝生存并筹集资金mesothelioma research。Heather is a tireless advocate for mesothelioma patients. She continuously supports new cancer research and an asbestos ban.
Heather is also a frequent contributor to Mesothelioma.com. She is happy to speak with patients and their loved ones about what to expect while fighting mesothelioma.
Mavis Nye: Pleural Mesothelioma Survivor
In June 2009, Mavis Nye was diagnosed with mesothelioma as a result of secondhand asbestos exposure. She was given a prognosis of three months.
Mavis underwent chemotherapy and then participated in severalclinical trials延长她的预期寿命。
Chemotherapy had stopped working for Mavis, and her tumors grew.She learned about an immunotherapy clinical trial测试KeyTruda®️。她参与临床试验使她能够在最初的预后生活几年。
Mavis仍在对抗间皮瘤癌症并接受治疗。万博专业版她的长期生存显示了临床试验的希望。她继续提高人们对石棉危险的认识share her journey on her blog。
Paul Cowley: Pleural Mesothelioma Survivor
Paul Cowley was diagnosed with malignant pleural mesothelioma in 2012 at age 34.
Paul’s young age and good health allowed him to undergo an aggressivemultimodal treatment plan。The plan included two surgeries to remove tumors from his pleura and nearby tissues. Paul also underwent six rounds of chemotherapy.
保罗的妻子克莱尔·考利（Claire Cowley）说，这一时期是“他一生中最难的六个月”。但是，毅力使他比以往任何时候都更加强大。在此期间，这对夫妇还抚养了他们的小儿子，克莱尔是保罗的照顾者。
As a result of treatment, he has survived more than eight years. Paul now spends time with his family he didn’t think he would have.
He continues to raise awareness about the dangers of asbestos and mesothelioma. Paul is grateful to be a long-term mesothelioma survivor.
Jim Dykstra: Peritoneal Mesothelioma Survivor
Jim Dykstra was diagnosed withperitoneal mesothelioma2013年。吉姆（Jim）对间皮瘤的诊断是在2011年睾万博专业版丸癌诊断之后进行的。
To treat his mesothelioma, Jim underwent cytoreductive surgery. His surgery was followed byhyperthermic intraperitoneal chemotherapy (HIPEC)。Jim also underwent radiation and chemotherapy, and later immunotherapy.
吉姆今天仍在与该疾病作斗争，是7年的间皮瘤幸存者。万博专业版吉姆对其他间皮瘤患者的建议是“要坚强，请记住万博专业版您并不孤单。”
保罗·克劳斯（Paul Kraus）：腹膜间皮万博专业版瘤幸存者
Paul Kraus was born into a Nazi camp in Austria. He later escaped with his family and moved to Australia. Due to a high prevalence of asbestos, Australia has high rates of mesothelioma.
Paul was diagnosed with peritoneal mesothelioma in 1997. At diagnosis, Paul was given only weeks to live.
Paul turned toalternative treatments并设法停止了他的癌症的传播。他保持严格的饮食，服用营养补充剂和冥想。
Paul also regularly undergoes ozone therapy. Ozone therapy is a controversial treatment based on the theory that cancer cells don’t thrive in oxygen-rich environments. Paul also attributes his well-being to his positive outlook.
He is one of the longest-living mesothelioma survivors in the world and has written about his experiences.
Resources for Mesothelioma Patients
02. Remembering Mesothelioma Survivors
纪念晚期间皮瘤幸存者万博专业版
尽管一些间皮瘤幸存者已经通过万博专业版了way, many outlived their initial prognosis. Their stories still give hope to patients and highlight the importance of treatment advancements.
Learn about these cherished members of the mesothelioma community below.
Stephen Jay Gould: 20-Year Peritoneal Mesothelioma Survivor
Stephen Jay Gould was a popular scientific author, paleontologist and evolutionary biologist. Gould authored more than 20 books and hundreds of essays published inNatural Historymagazine.
他被诊断出患有腹膜间皮瘤在1万博专业版982 and given a life expectancy of around eight months.
After Stephen’s diagnosis, he wrote “The Median Isn’t the Message.” It is an essay about his reaction to his diagnosis and poor prognosis. Stephen’s essay has been cited as a source of comfort and hope by many cancer victims.
Stephen underwent multiple surgeries in combination with radiation and chemotherapy. After experiencing severe chemotherapy side effects, Stephen used medical marijuana. He credited the drug for its medicinal effects and for helping him stay positive throughout his treatment.
尽管他最初万博专业版间皮瘤预后，斯蒂芬诊断20年后生活。他于2002年死于与间皮瘤无关的肺癌。万博专业版
Louise “Lou” Williams: 15-Year Peritoneal and Pleural Mesothelioma Survivor
Louise “Lou” Williams was diagnosed with peritoneal mesothelioma in 2003. Lou’s diagnosis came after eight years of unexplained chronic fatigue and one year and a half of misdiagnoses. Her treatment consisted of surgical removal of the tumors and 18 sessions of chemotherapy.
Lou initially overcame peritoneal mesothelioma but was diagnosed with pleural mesothelioma in 2009. Her pleural mesothelioma treatment involved three aggressive surgeries and chemotherapy.
Despite being told she had no more options in January of 2015, she insisted on continuing her fight.
她接受了14天的辐射路线，然后是Keytruda®。At the time, Keytruda® was a new immunotherapy drug that had shown promise in clinical trials. Throughout her treatment,Lou advocated for the accessibility of new immunotherapy drugsand worked towards a global asbestos ban.
Lou可悲的是在2017年4月18日生存了近15年后，于2017年4月18日去世。万博专业版卢（Lou）是受石棉暴露和间皮瘤影响的人的激烈倡导者，教育者和支持者。万博专业版
Emanuel Costa: 4.5-Year Peritoneal Mesothelioma Survivor
Emanuel Costa was diagnosed with peritoneal mesothelioma at age 35. Emanuel’s mesothelioma was treated with multiple rounds andtypes of chemotherapy, includingGemzar® (gemcitabine)andcisplatin。
After undergoing chemotherapy, Emanuel’s doctors recommended debulking surgery. Following a period of recovery, he again underwent chemotherapy, radiation and other treatments to stop the cancer’s spread.
Although his cancer continued to spread, Emanuel outlived his initial prognosis of six months. He survived four-and-a-half years with the disease.
Emanuel is remembered by his wife, Gina Martucci, and their two children. Emmanuel’s daughterSarah remembers his strength and perseveranceduring his cancer journey. The family continues to honor Emanuel’s memory by advocating for mesothelioma cancer research.
03. Improving Mesothelioma Survival
How Treatment Is Improving Mesothelioma Survival
治疗技术和诊断工具的进步已经增加mesothelioma survival rates。在某些情况下，改进的诊断工具可以帮助医生发现间皮瘤。万博专业版早期诊断和治疗对于改善至关重要mesothelioma life expectancy。
研究人员继续测试新疗法和组合的功效。化学疗法技术HIPEC最近取得了成功。在一项研究中，研究人员发现，手术后接受HIPEC治疗的腹膜间皮瘤患者的生存率为52％。万博专业版
临床试验中的一些新实验治疗也已成功。临床试验测试免疫疗法，基因疗法和其他新疗法已扩大某些患者的生存率。
Mesothelioma patients who pursue treatment may be more likely to improve long-term survival than those who forgo treatment. However, life expectancy can vary based oncancer type,stageand a patient’s health.
“Survivorship is a test of resilience. I never understood when people told me that I was going to come out stronger, but now on the other side, I feel like I can do anything,”
-Heather Von St. James
Factors Impacting Long-Term Mesothelioma Survival
There is no cure for mesothelioma cancer, but there are factors that impact life expectancy. Although some factors are out of an individual’s control, there are proactive measures patients can take to potentially prolong survival.
Factors that impact long-term survival are:
- 年龄和整体健康: A patient’s health and age may affect the immune system’s ability to fight mesothelioma cancer. A patient with fewer health complications may have better long-term survival.
- Early diagnosis: Early detection is the best way to improve mesothelioma survival. New blood tests and biomarkers, such as mesothelin and HMGB1, are helping detect mesothelioma before it advances.
- A patient’s unique diagnosis：间皮瘤的位置，细胞类型和阶段有助于确定患者的预后和治疗选择。万博专业版间皮万博专业版瘤专家可以帮助患者制定最适合其诊断的治疗计划。
- 间皮万博专业版瘤医生和癌症中心: Finding anoncologist with experience treating malignant mesotheliomacan help patients get the best treatment possible. Top doctors are often connected withmesothelioma cancer centerswhere teams specialize in treating the disease.
- The right treatment plan：一个个性化的治疗计划可以符合患者的特定诊断。医生可能会推荐标准治疗，临床试验或治疗组合，以最好地提高预期寿命。
A万博专业版间皮瘤诊断can be isolating. The journey can be difficult for patients and their loved ones. A support system and positive outlook can improve a patient’s quality of life. A sense of support can also help them face treatment and their fight against cancer.
为患者，幸存者和照顾者提供支持资源。万搏manbext登录网址
Can Mesothelioma Patients Achieve Remission?
Some mesothelioma patients experience complete remission or partial remission.
Complete remissionoccurs when all detectable signs and symptoms of the cancer are gone. Complete remission is also called “no evidence of disease.”
Partial remission意味着肿瘤的大小减少。这也可能意味着整个身体的癌症较少。只要癌症不再疾病，部分缓解就可以使某些患者停止治疗。
Both forms of remission can allow patients to live a full life. However, even patients in remission may experience a recurrence of cancer. Patients should maintain long-term follow-ups and monitoring with their mesothelioma care team.
Every mesothelioma survivor has a unique cancer journey, but together they unite the mesothelioma community. These stories help patients inspire and support each other as they fight this disease.
